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My Son Was Autistic. Is He Still?

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1 My Son Was Autistic. Is He Still? on Sat Nov 22, 2008 9:24 pm

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Neka netko ovo prevede,makar ukratko !!!

By Jayne Lytel
Special to The Washington Post
Tuesday, November 18, 2008; Page HE01


Leo Lytel, labeled autistic at age 2, works on a puzzle that tests his reasoning skills.

Paging through 176 MRI scans of my 9-year-old's brain on my home computer, I discovered a button that let me play them as a movie. Gray swirls burst onto the screen, dissolving into one another and revealing a new set of patterns. Beams of light faded in and out, some curving and traveling around the different regions of his brain. I saw the squiggly folds of his cerebral cortex, the gray matter that is the center of human intelligence.
These scans, the most intimate pictures I had ever seen of my son, Leo, may help researchers understand what's going on in his head -- and relieve him of a diagnosis that I have devoted several years to helping him overcome.

Leo, identified as No. C1059, underwent the scans as part of a research study at the Olin Neuropsychiatry Research Center at Hartford Hospital in Connecticut. He was thrilled to earn $200 for taking part. I smiled along with him, because I could remember the days when he had a limited range of emotions, and pride was not one of them.

The study is examining 35 children, ranging in age from 8 to 17, who once had an autism-spectrum diagnosis but no longer do. Leo was invited to participate based on how I had described changes in his behavior and communication skills since he was given an autism diagnosis seven years ago. It is one of several studies underway to clarify the experiences of a growing number of children who are apparently emerging from autism and its related disorders to function almost indistinguishably from their peers; it aims to reveal whether it is indeed possible to recover from autism.
According to many experts, recovery from an autism spectrum disorder -- a pervasive impairment in thinking, feeling, language development and the ability to relate to others that affects one child out of every 150 in the United States -- is real. But the meaning of recovery differs from researcher to researcher as much as it does from parent to parent.

I know what recovery means for me: to have a conversation with Leo, especially about love and friendship, and to see him play a team sport. When Leo asked to join his school's soccer team this fall, I thought back to the distressing days when he ran aimlessly around the back yard, clueless about the purpose of the two goals I had set up.

The idea that a child can recover from an autism spectrum disorder is controversial. Skeptics argue that recovery is impossible from a disorder they view as lifelong: more like being born with clubfoot than twisting your ankle. And if the condition is "cured," they say, then it can't have been autism to begin with. No one knows how many children have lost their diagnosis since there are no nationwide statistics accepted by the medical establishment.
"If I absolutely had to guess, I would think that the percent that are capable of recovery might be in the neighborhood of 20 percent," said Deborah Fein, a professor of psychology at the University of Connecticut and lead researcher of the study my son participated in.

Some experts don't like to talk about recovery, because it implies no detectable difficulties. "Sometimes parents want me to say their child is normal," after improving so that they no longer meet the specific criteria for a diagnosis of autism, said Fred R. Volkmar, director of the Child Study Center at the Yale School of Medicine and one of the world's leading autism experts. "If by that you mean no detectable social troubles or oddities, that is uncommon," he said. "It happens, but usually there are some problems that persist, even if they are minor."

Those problems, Fein said, include other learning disabilities and psychiatric conditions, most often attention-deficit hyperactivity disorder. Social phobias may also persist. A child with a social phobia is capable of making friends but avoids big parties and being the center of attention.
A Catch-All Diagnosis

My son was 2 years old when a behavioral evaluation labeled him autistic. The report said:

"Neurological examination revealed a self-directed, language-delayed boy who had pacing behavior.

"Imaginative play was infrequently seen . . . . The results for Leo using the CARS [Childhood Autism Rating Scale] were consistent with a diagnosis of autism."

Leo had the three cardinal traits of autism: poor social interaction, lack of verbal and nonverbal communication, and funny mannerisms, more clinically described as odd and repetitive behavior and fixed interests. Three months later, he received a diagnosis from the Yale Child Study Center of PDD-NOS, or "pervasive developmental disorder -- not otherwise specified." It's a catch-all diagnosis on the autism spectrum for people who are less likely than others to have intellectual impairment.

Words popped out of Leo's mouth every now and then, and he repeated phrases from "Thomas the Tank Engine" videos without any context. It was a challenge for him to express a basic need, such as "more juice." He ignored group activities and never broke out in a big smile to share an accomplishment. Under stress, he traced the floral design on our rug or paced as if he were trying to figure something out. At the beach, he pitched his forehead into the sand, scooping up wet handfuls to dribble them on either side of his temples. In the grocery store, he'd burst out crying for no apparent reason.
Spooked Into Action

Leo's diagnosis also had a profound impact on me. It spooked me into action.

The science of early human development tells us that the brain has breathtaking plasticity during the first three years of life. I was in a race against time to set him on a developmental path that would lead to independent living. The urgency to help him was almost primal.

I abandoned my writing career to manage an early intervention program that Yale and Leo's special education teachers recommended. At its height, Leo's program consisted of up to 35 hours a week of seven different therapies, and I was always on the lookout for anything else that might help him.

We settled on those with the most scientifically proven strengths. They included an approach to behavior modification that didn't include repetitive instruction, a form of play therapy, social skills groups, occupational therapy and speech therapy. We tried but stopped several alternative therapies: music therapy and auditory integration therapy, which supposedly re-teaches the ear to listen, and neurofeedback, which supposedly retrains the brain to focus more.

It was an incredible juggling act as I struggled to prioritize treatments that experts recommended. I also fretted about ignoring Leo's older brother while engaging in battles with the D.C. school system and my health insurer over payment for his special education and therapies and monitoring his progress to adjust the program as he progressed. I led this life for four years, while my husband paid the family bills.

Seven years after the initial diagnosis, Leo has achieved significant gains in areas thought to be unattainable by even high-functioning children with autism spectrum disorders.

He attends a regular school and is socially engaged, articulate, creative and performing at grade level with a tutor for reading and handwriting. He understands and can express complex and abstract thoughts. He can empathize. And he has friends he cares about and who care about him.

I won't say that all the traits that led to Leo's diagnosis have disappeared. But the ones that remain are not unique to children with autism spectrum disorders.

For all his achievements, he is a spirited little boy with hair-trigger emotions that can overtake him when he cannot bend the world to his will. His behavior is sometimes compulsive. In Freudian terms, he is all id.

As for me, I became the socially isolated person I worked so hard to keep Leo from becoming. My social network disintegrated in the years that I immersed myself in Leo's recovery.
The Jury Is Still Out

Fein and her team in Hartford will either validate my belief that Leo has moved off the autism spectrum or tell me he is still on it. We're waiting to hear.

Their testing over two days was comprehensive. An examiner evaluated Leo's IQ, language and social skills, and his behavior and interests. She asked him questions such as "What is footwear?" and "What does 'find fault' mean?" Leo said, footwear "is something you put on your feet to keep them from getting dirty." He said "find fault" is a "way of saying that you are not the person who, for example, broke your mom's favorite vase."

To test his reasoning skills, he had to solve mathematical games such as the Tower of Hanoi puzzle, moving a stack of disks from one rod to another without putting a larger disk on top of a smaller one.

The brain scans that I found so mesmerizing were intended to give researchers more understanding about how his brain behaves by showing which regions lighted up when he responded to certain statements. Some were designed to evoke a visual image ("The letter 'J' looks like an umbrella handle"); others either stated, or misstated, facts ("Elephants can breathe underwater").

I answered hours of questions focused on Leo's ability to make and keep friends. I said Leo had friends, even a best friend, and asked for play dates without prodding from me. That's key: While many children with autism spectrum disorders have friends, according to Catherine Lord, director of the University of Michigan Autism and Communication Disorders Center, they don't seek out peer relationships. "Having an aunt or a music teacher as a friend doesn't count," she said.
Hope for Parents

Researchers today credit earlier diagnosis and treatment for creating more positive outcomes like my son's, but early intervention isn't the whole story.

In 1980, when autism was added to the Diagnostic and Statistical Manual of Mental Health Disorders (DSM), the bible for psychiatric disorders, the diagnosis focused on mental retardation. Studies showed that up to two-thirds required residential care or hospitalization in adulthood. About 2 percent achieved moderate to high levels of independence and had some friends but worked menial jobs in factories and office buildings.

In 1994, the fourth revision of the DSM broadened the criteria for autism to include individuals who were more cognitively able. Since then, not surprisingly, studies have shown rosier outcomes for more children.

In 2007, Wendy Stone, a professor of pediatrics and psychology at Vanderbilt University, compared her own study of a group of children age 2 to 4 who had been given an autism diagnosis with the results of similar studies. Children received various types and amounts of intervention. But the number of therapy hours they received did not predict their outcome. What did? Age at diagnosis, symptom severity and cognitive skills.

"I don't know that the children 'recovered,' though they did improve . . . to the extent that they no longer met the diagnostic criteria," Stone said. "Almost all continued to have some form of developmental disorder."

"I think the most hopeful message we need to give parents," said Geraldine Dawson, chief science officer of the nonprofit group Autism Speaks, "is that all children with autism are capable of learning and developing new skills with the help of early intervention."

And that's just what my now affectionate and fun-loving son, Leo, has done, whatever the results of the Hartford testing ultimately show.

Jayne Lytel is author of "Act Early Against Autism: Give Your Child a Fighting Chance From the Start" (Perigee). Comments: health@washpost.com.


_________________
P. 1998.g-pervazivni razvojni poremećaj




If someone tells you they have 'found the cure' 'cause' for Autism make sure you see their Nobel Prize before you buy whatever they are selling.

2 Re: My Son Was Autistic. Is He Still? on Sun Dec 28, 2008 8:21 pm

wendy37


Leo Lytel, označenom kao autističan u dobi 2, radi na puzzle koje testove njegov rezon vještine.

Pager preko 176 MRI scans moj 9-godišnji je na pamet moja kućna računala, otkrio sam gumb
dopusti mi da ih igrati kao film. Siva swirls praska na zaslonu, otapanje u jednu drugu
i otkriva novi niz uzoraka. Snopa svjetlosti u uveo i iz neke curving i putovanja
oko različitih oblasti njegovog mozga. Vidio sam squiggly nabora njegovih moždana kora, u
siva tvar koja je središte ljudske inteligencije.
Te provjere, najviše intimne slike sam ikada vidio mog sina, Leo, svibanj pomoć istraživača
shvatiti što se događa u njegovoj glavi - i osloboditi ga od dijagnoza koju sam posvetio
nekoliko godina da mu pomažu u prevladavanju.

Leo, identificiran kao No C1059, underwent se skenira kao dio istraživanja studij na Olina
Neuropsychiatry istraživački centar u Hartford bolnice Connecticut. On je bio oduševljen da zaradite
200 dolara za sudjelovanjem. Nasmijala sam zajedno s njim, jer nisam mogla sjetiti dana kada je imao
ograničen raspon emocija, i ponos nije bio jedan od njih.

U istraživanju je ispitivanje 35 djece, u rasponu starosti od 8 do 17, koji je nekada imao autizam-spektra
dijagnoza, ali više ne radimo. Leo je bio pozvan da sudjeluje na temelju kako sam opisao promjene
u svom ponašanju i komunikacijske vještine jer dobio je dijagnozu autizma sedam godina
. To je jedan od nekoliko studija u toku kako bi pojasnili iskustava, a sve veći broj
djecu, koji su navodno nastaju iz autizam i njegovih povezanih poremećaja u funkciji skoro
indistinguishably od svojih vršnjaka, ona ima za cilj otkriti da li je zaista moguce da se oporavi od autizma.

Prema mnogim stručnjacima, oporavak od autizma spektar poremećaja - a prožima umanjenja vrijednosti u
mišljenja, Osjećaj, razvoj jezika i sposobnost da se odnose prema drugima koji pogađa jedno dijete
iz svake 150 u SAD - je pravi. Ali u smislu oporavka razlikuje se od projekta
istraživač na koliko je to od roditelja do roditelja.

Znam što znači oporavak za mene: da ima razgovoru s Leo, osobito o ljubavi i prijateljstva,
i da ga vidi igraju momčadski sport. Kada Leo zamolio da se pridruži njegovoj školi je nogometni tim za ovu jesen, ja mislio
natrag na tužan dana kada je vodio aimlessly po dvorištu, clueless o cilju
dvaju ciljeva sam postavio.

Ideja da se dijete može ozdraviti od autizma spektar poremećaja je sporno. Razuvjeriti skeptike da
oporavak je nemoguće od poremećaja su vidjeli kao cjeloživotno: više kao što su rođeni s clubfoot od
uvijanje vaš gležanj. A ako je uvjet "izliječili", kažu, onda to ne može su autizam za početak
sa. Nitko ne zna koliko djece su izgubili dijagnozu jer nema zemlje statistika
prihvaćena od strane medicinske osnivanju.
"Ako sam apsolutno morala pogoditi, ja mislim da bi postotak koji su sposobni za oporavak može biti u
susjedstvo od 20 odsto ", rekao je Debora Fein, profesor psihologije na University of Connecticut
i voditeljica istraživanja ove studije moj sin sudjelovao rezervirati

Neki stručnjaci ne žele govoriti o oporavku, jer podrazumijeva ne prepoznatljiv teškoće. "Ponekad
roditelji žele mi reći da je njihovo dijete normalno ", nakon poboljšanja tako da se više ne zadovoljavaju određene
Kriteriji za dijagnozu autizma, rekao je Fred R. Volkmar, direktor djeteta Centar za studij na Yale
School of medicine i jedna od vodećih svjetskih stručnjaka autizam. "Ako tako misliš da nema prepoznatljiv
socijalne nevolje ili oddities, da je neuobičajeno ", rekao je on." To se dogodi, ali obično postoje neki problemi
da izdržati, čak i ako su manje. "

Ti problemi, Fein, rekao je, uključuju druge učenje invaliditetom i psihijatrijska stanja, najčešće
Deficit pažnje-poremećaja hiperaktivnosti. Svibanj također Društvene phobias ustrajati. A dijete s socijalna fobija
je sposobna izrade prijatelji, ali izbjegava velike stranke i kao središte pozornosti.
A Catch-all dijagnoza

Moj sin je 2 godine stara kada je ocjenjivanje ponašanja etiketom ga autističan. Izvješće je rekao:

"Neurološki ispit objavi samo-usmjereno, jezik-kasniti dječak koji je imao pacing ponašanje.

"Maštovite igrati je rijetko vidio.... Rezultati za Leo koristeći AUTOMOBILI [Childhood Autizam
Ocjena Omjer] bili su u skladu s dijagnozom autizma ".

Leo je imao tri kardinal osobine autizma: siromasima socijalne interakcije, nedostatak verbalna i neverbalna
komunikacija, i zabavno ponašanje, kao što je opisano vise klinički neparan i ponavljajući ponašanje i
fiksne interesa. Tri mjeseca kasnije, on je dobila dijagnozu od Yale Dijete Studija Centar
PDD-NOS, ili "koji prožima razvojni poremećaj - nije drugačije navedeno." To je ulov sve -
dijagnoza na autizam spektra za ljude koji su vjerojatno manje od drugih da imaju intelektualne
umanjenja vrijednosti.

Riječi popped iz usta svaki Leo sada i onda, i on je ponovio izraze iz "Toma Tenk
Motor »prikazivanje videa bez konteksta. Bio je to izazov za njega izraziti temeljnu potrebu, kao što su
"još soka". On je zanemarena skupina aktivnosti i nikad izbio u veliki osmijeh na dionici jednoga svršavanje.
Pod stresom, on je pratiti na cvjetnim dizajnom na naš tepih ili tempom kao da je lik pokušava nešto
van. Na plaži, njegova čelo mu se utabore u pijesak, scooping se mokro handfuls da ih na dribling
obje strane njegove hramove. U trgovine, on bi izbiti plakanje bez očita razloga.
Spooked u akciji

Lav je dijagnosticiranja također imali duboku utjecaj na mene. To spooked mi u akciju.

U znanosti ranog ljudskog razvoja govori nam da ima prekrasan plastičnost mozga tijekom
prve tri godine života. Bio sam u utrci protiv vremena da ga postavi na razvojni put koji
bi dovesti do nezavisne žive. Na hitnost kako bi mu bio gotovo istinski.

Ja odustala moje pisanje karijere za upravljanje ranu intervenciju program koji Yale i Lav je poseban
obrazovanje učitelja preporuča. Na svojoj visini, Leo program sastojao se od 35 sati do tjedan dana
sedam različitih terapije, i uvijek sam bio na vidikovcu za bilo što drugo što bi mu pomognu.

Mi naseljavaju na tim s najviše znanstveno dokazane prednosti. Oni uključuju pristup na
modifikacija ponašanja koji nisu pouku ponavljaju, oblik igrati terapiju, socijalne
sposobnosti grupe, radna terapija i terapija govora. Pokušali smo već prestali nekoliko alternativa
terapije: glazbene terapije i gledaoci integraciju terapija, koja navodno ponovno predaje na uho
slušati, i neurofeedback, koji navodno retrains mozga da se usredotoči više.

Bilo je nevjerojatno žonglerstvo djelovati kao ja struggled da prioritize tretmane koji stručnjaci preporučili.
Također sam fretted o ignoriranje Leo's stariji brat, a uključenje u borbama s DC škola
sustav i moje zdravlje osiguravač za plaćanje preko njegove posebne obrazovanje i terapije i praćenje njegove
napredak za prilagodbu programa kao što je napredovala. Sam vodio ovaj život za četiri godine, dok je moj muž
plaćeni obitelji računa.

Sedam godina nakon početne dijagnoze, Leo je postignut značajan dobitak u područjima mislio da se
nedostupan čak i prema visokog funkcioniranje djece s poremećajima spektra autizma.

On pohađa redovne škole, te je društveno angažiran, jasno, kreativne i učinkovite u razredu
razini s tutor za čitanje i rukopisa. On razumije i može izraziti složene i sažetak
misli. On može empathize. I on je on prijatelji i koji se brine o skrbi o njemu.

Neću reći da je sve osobine koje je dovelo do Lav je dijagnosticiranja, nestali su. No one koji ostaju
nisu jedinstvene za djecu s poremećajima spektra autizma.

Za sva njegova dostignuća, on je odlučan dječak s vlas-aktivirati emocije koje mogu sustići ga
Kad ne može savijati svijeta na svoje volje. Njegovo ponašanje ponekad je obavezan. U frojdovski rečeno, on je sve id.

Kao za mene, ja postao socijalno izolirane osobe sam radio tako teško zadržati Leo iz postaje. Moj socijalni
mreža disintegrated u godinama da sam zadubljen u sebe Leo's oporavka.
U žiri je još uvijek out

Fein i njezini suradnici u Hartford će ili potvrditi moje uvjerenje da Leo ima preselili izvan spektra autizma
ili recite mi je još uvijek na njemu. Mi čekamo da čujemo.

Njihova testiranja tijekom dva dana bio sveobuhvatan. Jedan ispitivač ocijenili Leo's iq, jezika i socijalnih vještina,
i njegova ponašanja i interesa. Ona upita ga pitanja poput "Što je obuću?" i "Što traži
greška 'znači? ", rekao je Leo, obuće" je nešto vas staviti na noge da bi im od dobivanja prljave. "On je
rekao je "zameriti" je "tako da niste osoba koja je, na primjer, slomi tvoja mama je omiljena vaza."

Za testiranje sposobnosti njegove pameti, morao je riješiti matematičke igre poput kula Hanoi zagonetka,
premještanja stog diskova iz jedne u drugu bez batina puštanju veći disk na vrhu jedan manji.

Mozak skenira da sam našao tako mesmerizing su namjeravali dati istraživači više razumijevanja
o tome kako njegov mozak ponaša prema regijama koje prikazuju osvijetljeni se kad je odgovorio na određene izjave.
Neki su dizajnirane za prizivati vizualnog slika ( "slovo" J "izgleda kao kišobran handle"); drugima
bilo je navedeno, ili misstated, činjenica ( "slonova mogu disati podvodni").

Ja odgovorih sati Leo pitanja usmjerena na sposobnost da se zadrži i prijatelje. Rekao je Leo imao sam prijatelja,
čak i najbolji prijatelj, i pitao za igrati bez datuma prodding od mene. To je ključ: Dok mnoge djece
s autizam spektar poremećaja imaju prijatelje, prema Katarina Gospodine, direktor na Sveučilištu u
Michigan Autizam i komunikacijskog centra za poremećaje, ne tražite iz odnosa s vršnjacima. "Ima
tetka ili glazbeni pedagog, kao prijatelj ne ", rekla je ona.
Nada za roditelje

Istraživači danas kreditne ranije dijagnozu i tretman za stvaranje pozitivne rezultate kao i moga sina,
ranih intervencija, ali nije cijela priča.

Godine 1980, kada je autizam je dodao da je za dijagnostiku i Statistički priručnik Mentalno zdravlje poremećaje (DSM),
Biblija za psihijatrijskih bolesti, dijagnoza usmjerena na mentalna retardacija. Studije su pokazali da se
za dvije trećine potrebne stambeno zbrinjavanje ili hospitalizacija u zrelo doba. O 2 posto postignute umjeren
na visoku razinu neovisnosti i imao neke prijatelje, ali radio slugarenja radnih mjesta u tvornicama i uredske zgrade.

U 1994, četvrta revizija u DSM proširiti kriterije za autizam uključiti pojedince koji su bili
cognitively više mogućnosti. Od tada, nije iznenađujuće, istraživanja su pokazala rosier ishode za više djece.

U 2007, Wendy Stone, profesor iz pedijatrije i psihologije na Sveučilištu Vanderbilt, u usporedbi svoju
Studija je grupa djece dobi od 2 do 4 koji su bili daje dijagnozu autizma s rezultatima slične
studija. Djeca primili razne vrste i količine intervencije. Ali broj sati terapije su
Primili nisu predvidjeli njihov ishod. Što? Starost na dijagnozu, simptom strogost i kognitivne vještine.

"Ne znam da djeca" oporavila ", iako oni poboljšati... Do te mjere da se više ne
zadovoljio dijagnostičke kriterije ", rekao je Stone." Gotovo svi nastavila je neki oblik razvojni poremećaj ".

"Mislim da je većina se nada poruku moramo dati roditeljima", rekla je Geraldine Dawson, šef znanosti časnik za
je neprofitna grupa Autizam govori ", da je sve djece s autizam su sposobni za učenje i razvoj
nove vještine uz pomoć ranih intervencija. "

A to je upravo ono što je moj sada nježan i zabavna-voli sina, Lav, je učinio, bez obzira na rezultate u
Hartford testiranja u konačnici pokazati.

Jayne Lytel je autor "Rana Zakon protiv Autizam: Dajte vaše dijete jednog Fighting prilika od početka"

3 Re: My Son Was Autistic. Is He Still? on Sat Jan 03, 2009 1:50 pm

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_________________
P. 1998.g-pervazivni razvojni poremećaj




If someone tells you they have 'found the cure' 'cause' for Autism make sure you see their Nobel Prize before you buy whatever they are selling.

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